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Muscular Dystrophy News
10 小时
Corticosteroid at low dose may help with muscle damage, inflammation
A pilot study in 19 LGMD patients and one with Becker MD found low-dose prednisone helped lower markers of muscle damage and ...
Muscular Dystrophy News
5 天
DYNE-101 is leading to functional gains for DM1 patients in trial
DYNE-101 eased myotonia and led to other functional improvements for people with myotonic dystrophy type 1 (DM1) in a ...
Muscular Dystrophy News
8 天
My original diagnosis was incorrect. Here’s why that’s important.
Columnist Patrick Moeschen was given an incorrect diagnosis of Becker muscular dystrophy, years before learning he actually ...
Muscular Dystrophy News
12 天
Gene-editing therapy for LGMD shows promise in mouse model
A gene-editing therapy may correct a defect in the DYSF gene that drives a form of limb-girdle muscular dystrophy (LGMD), per ...
Muscular Dystrophy News
7 天
GIVI-MPC named FDA orphan drug for treatment of Becker MD
GIVI-MPC, a stem cell therapy for certain types of muscular dystrophy, has been granted orphan drug status for treating ...
Muscular Dystrophy News
13 天
How ‘The Remarkable Life of Ibelin’ moved me as a DMD survivor
Columnist Shalom Lim saw elements of his own journey with DMD reflected in the Netflix documentary "The Remarkable Life of ...
Muscular Dystrophy News
4 天
Stuck in limbo with both accessible vans out of commission
An accident and a malfunction render both of columnist Betty Vertin's accessible vans useless, leaving the family without transportation.
Muscular Dystrophy News
7 天
How my FSHD progression leads to out-of-body experiences
Many times over the years since the 1989 car crash that nearly killed me, I’ve been asked if I had any near-death or out-of-body experiences while I hung between life and death. I always try to ...
Muscular Dystrophy News
11 天
Waking up on Christmas Eve made me scared and anxious
Columnist Betty Vertin woke up Christmas Eve scared and anxious at the thought that her youngest son with DMD would soon be unable to walk.
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