Caregiving for young men with Duchenne isn't easy, but columnist Betty Vertin and her husband have learned to provide care as a team.
Muscular Dystrophy News Today covered the latest studies, treatment advances, and clinical trials for different types of the ...
How can you measure a person's quality of life? For columnist Patrick Moeschen, the key is deciding for yourself what a good ...
As her sons with DMD grow older and experience more disease progression, columnist Betty Vertin struggles to feel as hopeful as she once did.
Agamree (vamorolone) has been recommended for use in the National Health Service (NHS) in England, Wales, and Northern Ireland for treating Duchenne muscular dystrophy (DMD) patients, 4 and older. “We ...
Living with Duchenne muscular dystrophy (DMD) has involved a series of challenges and triumphs, each shaping the person I am today. As 2025 approaches, I’m reflecting on that journey as well as ...
Facioscapulohumeral muscular dystrophy (FSHD) primarily affects muscles in the face, scapular region, and upper arms, hence the name. Progression is different for everybody, but the condition can ...
In the past few weeks, as I’ve sat down at my laptop to write my columns, I’ve often wondered if readers think I’m crazy. One week my columns are full of positivity and gratitude for the things I’ve ...
The investigational oral therapy sevasemten significantly reduced markers of muscle damage in people with Becker muscular dystrophy (BMD) treated in a Phase 2 trial, according to top-line results ...